To Whom It May Concern,
My name is Summer Canady and I was diagnosed with Ankylosing Spondylitis. I committed to bring awareness and support to the community. For the past 2 years I have worked to start Tennessee’s very first Support Group Sponsored by The Spondylitis Association of America.
The project Giving Spoons, created to assist families in financial burden, be it due to high medical expenses out of pocket or low income available due to lack of being able to maintain a full time job. We are not like your typical assistance program. Although we will have eligibility guidelines, the net of your income will not always be a deciding factor.
At Giving Spoons we understand that high deductibles and copay’s can still bring about burden to an otherwise stable income. That’s why we will be providing eligibility guidelines outside of just having a low net income. As long as you fall under at least on the the guidelines you will be eligible for certain assistance.
Our project is also dedicated to not just offering a solution financially, but to build a family of support with our growing list of pen pals, both diagnosed and undiagnosed. We are here to become a family of support in all areas, emotional as well as all others.
The Invisible Illness wall calendar project in the works will be used as a tool to promote awareness, advocate for our community and put a face to Invisible Diseases. This project will be a source of fundraising for the Spondylitis Association of America. All proceeds going to support their efforts in leading the research and awareness
We will host fundraising events and bring Spondylitis Awareness to the forefront of communities using media of all sorts. The blog project at k.kicksomeas.com is dedicated to sharing the deep and not always pretty parts of living with an invisible illness. This stories will be turned into a book called Giving Spoons to Kick Some AS. This book will also be sold to fund my awareness and advocacy efforts. These stories will also be told via YouTube videos, and eventually live casts to include time for audiences to ask questions or contribute to the discussion.
I coined the phrase Kick Some AS when I was first diagnosed and that along with the phrase AS Doesn’t Rule My Life have been my motto. As time has passed, the importance of the spoon metaphor grew quickly in the Spondylitis community. This led to me coining the phrase, Giving Spoons To Kick Some AS and Together We Can Kick Some AS. I hope that you will join me on this journey.
Finally my crafting skills will be used to create custom pieces to sell in order to generate income to assist in funding Giving Spoons. I will give a percentage of my projects to the Spondylitis Association of America as I wouldn’t be capable of doing so much without them.
Please feel free to reach out to me for free educational information on Spondyloarthritis disease as well. We would be happy to provide you with brochures.